07 June 2016

Dyslexia and Literacy Difficulties
Summer Tennis Camp
Free Events at The Irish Workhouse Centre
4 x 4 Concert
Portumna & District Lions Club Annual Fun Cycle
Gortanumera National School
Redwood National School
Davitts Camogie Club
Bridge Club Results
Killimor GAA
Portumna and District Active Retirement Association
Lorrha National School
Port Omna Beo, Nature and Wild Life Group Tuesday 21 June
Ella's Story

Dyslexia and Literacy Difficulties
One-to-one tuition available for children with dyslexia and literacy difficulties. Classes will run throughout the summer. Please contact Breda Mahony on 086 1604461.


Summer Tennis Camp
Lorrha N.S. are running a summer tennis camp from Monday June 27th to Friday July 1st. with Kieran Galvin. All equipment is supplied. There will be daily fun, games and competitions. For details and to book a place call (090) 9747295.


Free Events at The Irish Workhouse Centre
Free Events at The Irish Workhouse Centre – Portumna on Sunday, 12th June (as part of the Portumna Fun & Fit Festival, 10th-12th June)
Archaeological Detective Challenge: Come and discover how archaeologists solve the puzzle of mystery objects! Participate in an excavation and have fun making pottery! Events at 2pm, 3pm and 4pm -- just drop-in! No booking required. Suitable for ages 7+.
Family Tree & Genealogy Drop-in Clinic: Receive some practical advice and tips on how to go about tracing your family tree online at these free drop-in sessions from 10 am - 4 pm; 1-on-1 help for absolute beginners; get answers to your genealogy queries and tips to start your research online.


4 x 4 Concert
As part of Portumna’s Fit for Fun Festival, Portumna Arts Group will host a concert on Friday, June 10th in Portumna’s Christ Church. From 9pm, come along and hear 4 writers and 4 singer/songwriters perform original work. Creative talent is abundant in Portumna and we are delighted to bring the voices of Joe Casey, Mike D’Alton, Miriam Donohue and Ruth Smith as well as the pen of  Margaret Hickey, Anne Marie Hough, Noelle Lynskey and Greg O’Connor.
Tickets are €10 and available from Hayes & Hayes, Palmerston Store, The Beehive, Cottage Antiques or Ladies Day. Another night to remember! Doors open 8.45pm.


Portumna & District Lions Club Annual Fun Cycle
Portumna & District Lions Club Annual Fun Cycle, Sunday 12 June at 1pm, The Square Portumna. As part of this year’s Portumna Fun & Fit Festival, the local Lions Club are holding their Annual Fun Cycle. All proceeds go to local charities – prizes for funniest bike/cyclist, best individual/club fundraised. Donations accepted on the day. No entry fee. Contact: 087-7427950. Come and join in the fun & do some good for your local community at the same time!


Gortanumera National School
Captain John Muldoon Visit: The students, staff and Board of Management would like to congratulate Captain John Muldoon and the Connacht Rugby team on their great success in winning the PRO12 title. John went to Gortanumera NS and as a past pupil we would like to thank him for visiting the school and bringing in the PRO12 Cup to show the children.
5k Fun Run/Walk: 5K Fun Run/Walk on Sunday, June 19th at 12pm starting at Gortanumera National School. Registration on the day at the school from 11:00am-11:45am. Adults €10, Child €5 and Family €20. Refreshments in the school afterwards. All support greatly appreciated.


Redwood National School
Redwood NS are delighted to offer 3 weeks of summer camp this year: Week 1: Multi activity camp 4th - 8th July Times 9.30 - 2.00pm €50 per child with reductions for siblings, Week 2: Tennis Camp 11th - 15th July Times 10.00 - 12.00 €40 per child with reduction for siblings, Week 3: Multi activity camp 18th - 22nd July 9.30 - 2.00 pm €50 per child with reductions for siblings. To Book 090 9747186  or 087 4478115 for more information.
Holy Communion 2016: Congratulations to all the children of the parish who received the sacrament of Holy Communion in Rathcabbin last week.
Anti bullying and Cyber bullying: Pupils from 3rd to 6th class took part in a workshop with Pat Courtney (www.antibullyingservices.ie) on anti bullying and cyber bullying. The children gained a lot from the talk.
FAI Soccer: All classes took part in FAI soccer training with James scott at school recently, we all learned some great new skills ahead of the Euro's!!
Redwood NS stars in mental health music video with Megan O' Meara: Many thanks to past pupil Megan O' Meara for including us in her music video for her song 'Please don't go' Megan is doing great work to promote mental health and in supporting Pieta House. Megan's song is available to download on spotify and itunes.


Davitts Camogie Club
The u10 team secured their fourth win of the league with a closely fought victory over Kilconerin. The u12 team has qualified for the county semi final after defeating Shamrocks in the quarterfinal. Well done to Chloe Farragher, Aisling Donnellan, Lisa Fallon and Leah Daniels who all lined out with the Galway u14 teams in last weekends Munster Blitz.


Bridge Club Results
The Contract Bridge Club finished the year with a party on Monday 30 May, 2016. The Winners on the night were 1st Kaye Duddy & Patsy Hanbury, 2nd Sheila Dillon & Kim Sundgren, Gross Iris Dennison & Denis Kelly, 3rd Pauline Mc Keon & Johnny Cowan, 4th Charlie & Margie Mullen, 5th Joan Ryan & Pauric Murray, 6th Elizabeth Ryan & Teresa Dillon, 7th Fr PJ Bracken & Brid Mc Namara, 8th Bernie Larkin & Cecilia Cox, 9th Fr Michael Finneran & Eileen Smith.
Player of the year: Geraldine Canning.
The 79 Bridge Club Player of the year: Paddy Kelly.


Killimor GAA
Last week's lotto numbers were 2, 6, 14 and 26. The 5 lucky dips (£20) were Niall Quinn, Kate Moran, Brian Lawless, Declan Costello and Philip/ David Treacy. Next weeks jackpot is £7,200 and the draw will be held in Treacys.


Portumna and District Active Retirement Association
The meeting scheduled for June 9 is cancelled as the members are going to the JB Keane play-The Matchmaker. The play is in the LoughRea Hotel, Loughrea.
Members please be aware there will be a “Do it yourself flower arranging evening“ on Thursday 16 June. Make sure you bring the following items, a container, Oasis, Flowers and any foliage from your own garden.


Lorrha National School
Lorrha N.S. are running a summer tennis camp from Monday 27 June to Friday 1 July. with Kieran Galvin. All equipment is supplied. There will be daily fun, games and competitions. For details and to book call (090) 9747295.
Enrolment forms for September are available from the school by contacting (090) 9747295 or email luanaofa@eircom.net. Log on to our web site www.lorrhans.ie or follow us on Facebook where you can view tips for parents and much more. Bus service available for school transport.


Port Omna Beo, Nature and Wild Life Group Tuesday 21 June
Port Omna Beo received funding from Waterways Ireland to facilitate Biodiversity Training. Ecologist, Caroline Lalor will lead the first of two training days on Tuesday 21 June 10am – 4pm. The focus for the first day will be on the flora along the banks of the canal in Portumna. Much of the day will be spent outdoors. Book by Friday 17 June. Contacts 086 3847613 or 087 2845443.


Ella's Story
Prologue: Ella Doyle is a 3-year child with Cerebral Palsy, this causes tightness in the muscles of her legs which means that she cannot walk or stand independently. Ella walks with a walking frame but as time progresses Ella will require a wheelchair. She is like any three-year-old, innocent with an enquiring mind and is now beginning to wonder why is she different?.
The Story: The three-year-old daughter of a South Galway woman diagnosed with Cerebal Plasy a few months after birth- has one shot at living life without a wheelchair. But her family needs €150,000 to make her dream come true. Ella’s mother, Nicola is from Killimor and her dad Simon Doyle hails from Arklow, Co. Wicklow.
Ella is happy, bright, mischievous, inquisitive and full of life. She loves dancing, singing and story time. Ella adores her little sister Millie who is 1.5 years old and has to follow all of Ella’s orders. Ella attends playschool and gets so excited when she hears it is a playschool day as it means lots of fun and games with her friends. Ella loves to get involved with all of the games but sadly she is currently unable to fully participate due to the limitations in her mobility.
Ella was born on the 10th December 2012 in the Coombe Hospital in Dublin; she came home two days later and was the best Christmas present we could have hoped for. As the months passed we noticed Ella was not moving around on the floor, as you would expect a baby to move. After a number of appointments in the Coombe Hospital Ella was diagnosed with Cerebral Palsy.
Ella’s cerebral palsy causes tightness in her legs (spasticity), which negatively affects her balance, coordination and muscle strength making simple tasks in life such as crawling, cruising and even sitting harder for Ella. Ella currently is unable to stand or walk independently.
Ella has been attending therapy in Enable Ireland ever since her diagnosis and amazes us every day with her determination, courage, patience and love of life. Ella wears orthotics on her legs, walks with a ‘Kaye’ walking frame and participates whole-heartedly in daily physiotherapy. However, spasticity over time causes shortening of muscles and tendons, joint contractures and bone deformities. Therefore a future of Botox, leg casting and orthopaedic surgical procedures is ahead of Ella to try and prevent these complications. Ultimately however, Ella will require a wheelchair in the future.
Ella has now been presented with an amazing opportunity of undergoing a life changing operation called Selective Dorsal Rhizotomy (SDR). SDR is a complex spinal surgical procedure that involves cutting some of the damaged sensory nerve fibres that are causing the spasticity. It is the only procedure that will permanently reduce or eliminate spasticity in the legs but unfortunately it is not available in Ireland.
This life-changing procedure will be carried out in the world-renowned St. Louis children’s hospital in Missouri, America. Dr. Park is an amazing neurosurgeon that specializes in pediatric neurosurgery and treating children with cerebral palsy using SDR. Dr. Park is consistently recognized in "The Best Doctors in America" list and has performed over 3,000 SDR procedures on children with cerebral palsy from all over the world. We feel so fortunate that Dr. Park has accepted Ella for this procedure as it will hopefully help Ella achieve her dream of walking and playing independently with her friends. The results of this surgery together with 2 years post-operative intensive physiotherapy in children like Ella are breath-taking; children who previously had been told they would never walk are walking, running and jumping.
To achieve Ella’s Wish to Walk we are relying on the goodness of people to donate and help this dream become a reality by raising €150,000. The money fundraised will go towards the surgery, post-operative intensive physiotherapy program and the equipment Ella requires to facilitate this program. Ella’s website www.ellaswishtowalk.ie and Facebook page ellaswishtowalk will be regularly updated with fundraising events, use of funds and Ella’s progress. Donations can be made via the website, facebook page or idonate.
Feelings upon diagnosis: The diagnosis came as a total shock; we were not prepared for how suddenly the news came and felt very alone and lost until we were referred to Enable Ireland. It was a very difficult time; overnight our lives changed and Ella’s future development became unknown. We also realised how little we knew about the cerebral palsy and so began a passage of discovery.
What happened after diagnosis? There was a period of time between diagnosis and entering Enable Ireland. Once we did enter Enable Ireland we found great support in the form of Social work, Physiotherapy, Occupational Therapy and Speech and Language. We submerged ourselves in therapy and found that that helped us deal with the emotional challenges and the ‘unknown’ that came with the diagnosis of Cerebral Palsy.
How did we learn about SDR: We learned about SDR from other parents that were preparing to bring their boys to the USA, this led to us starting our own research on SDR. Between that time and now we have done a lot of research into SDR from reading the scientific literature and best practice guidelines; discussions with medical doctors, surgical doctors (including neurosurgery and orthopaedic surgery) and physiotherapists; lastly meeting other families that have been through the SDR process.
Ella’s perspective / knowledge of her diagnosis: In the past few months Ella’s has become more aware of her limitations. Ella will often tell us that she cannot walk like her little sister Millie or like her friends in playschool. Ella struggles with the need to always have our assistance to move from one environment to another.
About SDR: See www.stlouischildrens.org/ourservices. 2 years intensive physiotherapy required postoperatively seeing the benefits of the surgery. To include physiotherapy 4/wk, hydrotherapy, equine assisted therapy, and intensive therapy weekends.


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